16° Meeting Scientifico – COVID-19 E MALATTIE RARE

16° Scientific meeting
COVID - 19 and Rare Diseases
14 January 2021 (ore 15.00 – 16.30)
Istituto Superiore di Sanità (Rome, Italy)
Aula Pocchiari
The webinar will be in English

Introduction and Chairs
Silvio Brusaferro, Istituto Superiore di Sanità
Luigi Bertinato, Istituto Superiore di Sanità
Annalisa Scopinaro, UNIAMO Federazione Italiana Malattie Rare
Domenica Taruscio,  National Centre for Rare Diseases, Istituto Superiore di Sanità


Rare diseases and COVID-19 in Romania: the point of view of academia
Emilia Severin, Professor, University of Medicine and Pharmacy "Carol Davila" Bucharest, Romania

Rare diseases and COVID-19 in Romania: the point of view of patients
Dorica Dan, President of the Romanian National Alliance for Rare Diseases (RONARD), Member of the EURORDIS Board of Director

Organizational points to consider to protect rare disease patients in the COVID-19 era
Giuseppe Turchetti, Professor, Institute of Management, Scuola Superiore Sant'Anna,Pisa, Italy

Discussion and conclusions
Domenica Taruscio, Director, National Centre for Rare Diseases, Istituto Superiore di
Sanità, Rome, Italy

Link to participate to the event: https://live.starleaf.com/OTUwMTMyNzI6MTA4Mjg1 
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