×

Attenzione

EU e-Privacy Directive

Questo sito si serve di cookie per gestire autenticazione, navigazione e altre funzioni. Servendoti del nostro sito acconsenti al collocamento di questo tipo di cookie sul tuo dispositivo.

Visualizza la ns. Informativa Estesa.

Visualizza la normativa europea sulla Privacy.

Visualizza la documentazione GDPR

Hai rifiutato i cookie. Questo diniego può essere revocato.
 

23° Scientific Meeting Online COVID - 19 and Rare Diseases

nEWTW_16%C2%B0-MEETING-SCIENTIFICO-ONLINE-28-GENNAIO-ORE-15-11-600x338
Categoria
meeting
Data
22/04/2021 15:00 - 16:30

23° Scientific Meeting Online
COVID - 19 and Rare Diseases

April 22, 2021 (h 15.00 – 16.30 CET)
Istituto Superiore di Sanità (Rome, Italy)
Aula Pocchiari
The webinar will be in English
 

 

Introduction and Chairs
Silvio Brusaferro, President of the Istituto Superiore di Sanità (ISS)
Luigi Bertinato, Head of the Scientific Secretariat to the President ISS
Annalisa Scopinaro, President of UNIAMO Federazione Italiana Malattie Rare
Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS

Chronic and rare lung diseases during the pandemic of COVID-19
Beatriz Lara, MD, Respiratory Medicine Department, University Hospital Coventry and Warwickshire
NHS Trust, Coventry, Warwickshire, UK

COVID-19 and rare diseases: the experiences of patients in Spain
Alba Ancochea Díaz, Elvira Martínez Jiménez, Federación Española de Enfermedades Raras -
Fundación FEDER para la investigación.

COVID-19 and rare diseases: a global perspectives of diagnosis, research and care during emergency. The clinical research global program in rare diseases fellowship experience
Barbara Hugonin, MD, Maternal Child Department, USL Toscana Centro, researcher and geneticist Rare Diseases Institute, Children Nationwide Hospital, Washington, fellow Leadership in Pediatric Program

Discussion and conclusions
Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS
Link to participate to the event: https://meet.starleaf.com/4896746467/app
If you wish to ask a question to speakers send a e-mail to: Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo.

 

 
 

Altre date

  • 22/04/2021 15:00 - 16:30

Powered by iCagenda